FTD prevention initiative

GENFI is now working with other groups across the world to further research into genetic FTD. We have now formed a group called the FTD Prevention Initiative (FPI) bringing together research consortia across Europe, North America and Australasia as well as other interested parties. Apart from GENFI, members of the ARTFL and LEFFTDS consortia in the USA are also part of the FPI as is the Australian Dominantly Inherited Non-Alzheimer Dementias (DINAD) study.

The FPI currently has a number of ongoing projects including developing a minimum shared dataset across all worldwide genetic FTD studies, and an investigation of the relationship of age at onset in an individual with genetic FTD to the age at onset within the parents and wider family.